Good morning,
I'm currently vice-chair of the Nevada MHPAC, a member of NAMI National Restraint and Seclusion committee,
and a member of Dr. Bill's (The Reverend Dr. William Barlett) Reno Buddhist church. I've served
on the committee which helped form Nevada's first mental health court, here in Washoe County. I've
served as Nevada ACLU's volunteer mental health coordinator, I teach an anger management course, as a volunteer, at NNAMHS,
the state hospital in Sparks and I recently had published this book, MENTAL ILLNESS: A GUIDE TO RECOVERY.
I've also been homeless, been arrested nine
times, been an inpatient at five different psych hospitals and have spent about 30 days in four point restraint, including
about six with an arm twisted behind my head to teach me a lesson. I've also spent 74 days
in solitary confinement, denied pen, pencil access to a telephone and prescription medication.
But, "people get bitter or better"[1]
"Convicts stand
higher on the ladder of acceptance than Mental patients"[2]
Like so many before
me, my real recovery began ... when I found a purpose in life.
If religion has a purpose, it is to lead people from bitterness; to help them find a purpose in life.
"Make a joyful noise unto the Lord ." Now, my
personal opinion is that this doesn't mean mouthing meaningless words of praise, treating God as if he was some insecure
medieval monarch, who might turn on you for failing to flatter him sufficiently. Rather, it is for an individual
to find work that makes you happy; that puts meaning in your life. Something that you would do gladly,
even if no money was involved. Imagine the change to the world if everyone looked forward to their day,
instead of dreading it.
I'd like to read a
few excerpts from an issue of THE JOURNAL, which unfortunately is no longer published. This is a magazine
which was very important in my recovery, and then tell you a little of my journey.
The first time I heard a consumer of mental health services say he looked at his 'illness' as more
of spiritual journey, the idea really upset me.... As he went on, in carefully crafted sentences, with a
great deal of passion and commitment regarding the client movement, which he claimed to represent, and the
benefits of self help, I found myself admiring the young man... I found myself wresting with my mind. What
was I doing ? Denying hope? Had I shut the door on the possibility of remission? "Could holding this life shattering
experience in a paradigm that contextualizes it as a spiritual journey shape attitude and actually facilitate wellness? [3]
My answer to this last question is: Yes,
definitely. My journey through mental illness has been a search for meaning. How better
to frame the purpose of any religion or spiritual believe than as a quest for meaning?
By the way, the difference between religion and spirituality
is that religion is for people who want to avoid going to hell; spirituality is for those who have been to hell and want to
avoid going back. [4]
I've taken a stroll
through hell that lasted for some years. While it's not someplace I want to return to, it's also
a place that I feel obligated to help others escape from.
Another somehat longer quote from an article in The Journal:
One day, early in his ministry of preaching
and healing, Jesus went home to visit his mother and family. Huge crowds gathered around the house, so
that even having a family meal was all but impossible. Later, as he went about town, visiting and teaching,
some of the neighbors came to Mary and said "you need to do something and quick! Your son is out of
his mind! He's gone mad!" Some even suggested that if she didn't do something,
they would.
Mary was overwhelmed
with a flood of emotions: embarrassment, shock, hurt, maybe even some guilt. She and Jesus' other relatives
discussed it, but were convinced that the ugly reports were true: Jesus was mentally ill! Even
some of the scribes and religious authorities were saying the same thing. So they hurried out to find Jesus
and to seize him for his sake and for theirs.
They came to the house where he was teaching.
"Your mother and brothers are asking for you," he was told. Jesus replied "Who are
my mother and brothers? Anyone who does the will of God, that person is my brother and sister and mother."
A flight of fancy by your author?
Not a chance! (Only a few liberties to help explain the story.) New Testament
readers, look up Mark 3:19b-21, 31-35. The neighbors told his family that he was existemi (Greek, meaning out of your mind or senses - a common
first century word for mental illness.)
Stigma was alive and well in the first century, just as it is today. This little, unnoticed
story shows how Jesus, because of his love for and identity with the mentally ill, was accused of being mentally ill himself.
Even Mary and the family were pulled into it by the stigmatizing neighbors. What family of a mentally
ill person today is not familiar with this experience? [5]
At the turn of the last
century, it has been estimated, that only between 6% and 8% of the people with a serious mental illness ever recovered.
As little as ten years ago (cite) an article was published that claimed that it was
only by the grace of God, that people recovered from a mental illness. It
was probably between four and five years ago that NAMI came out with the verified claim that between 50 -60% of people with
a serious mental illness were able to achieve significant recovery.
What has changed?
The
decade of the brain (1990-1999) brought substantial new advances to the treatment of the mentally ill. A
better understanding of various portions of the brain. New medications which have fewer side effects.
Doctors however, still can't say exactly why they work, or why they don't work for others. The
peer movement. Those of us with a major mental illness who have been able to achieve substantial recovery,
and in turn give hope to others who are just beginning their journey.
Studies have shown that approximately 40% of those with a mental
illness and their families first turn to their clergy. The clergy were found to be last in being helpful
and supportive. [6]
Eighty percent of patients
in psychiatric hospitals consider themselves to be religious or spiritual. Fewer than one-half
have a clergy person to attend them.[7]
Aside from those who
stay in the same community, people generally only go to a church they have been invited to. Often
people with mental illness, particularly in the early stages of recovery, have poor communication skills. People
who will approach them, let alone invite them someplace are rare.
Religion, generally considered a force for good has, in my
life, pointed largely towards confusion.
My father was excommunicated from the Catholic Church for refusing to force my mother, who was
raised Protestant, to raise my brothers and I as Catholic. My mother was... a strong willed woman.
Even if he had wanted to, he wouldn't have been able to persuade her. As a cop who fought corruptions
in what might arguably been the most corrupt county in the U.S., I got the feeling he just saw this dictate as another form
of corruption.
My mother was also a
troubled person. I was about age six when my father wanted my mother to check into a psychiatric hospital.
He was going to try to have her committed, but I forgot to follow his instructions from the night before... and it
didn't happen.
Psychiatric hospitals
in the 50's were places you rarely got out of. Who knows what the future would have been like, for
me or my brothers. Although, aside from the first few seconds I never blamed myself for this.
In church, at about ten years old, I read
a prayer. Part of it read; "God is everything." The thought that
then entered my mind was; The universe is everything. The universe is God.
This was a comforting though. I'm
part of the universe, I'm part of God.
No,
I heard from my Sunday school teacher.
God is separate from you. You can't be part of God. That was cold
and distancing. I so much wanted to be part of something, and yet God wouldn't have me?
At age eleven or twelve, I was diagnosed with epilepsy.
Shortly afterwards, a kid in the schoolyard started pointing out another kid who was on his way, headed to the school
for the disabled. "He has seizures, he's possessed by the devil."
I stepped up to him, "I have seizures." He backed away. So
did his friends. The only one who stood his ground next to me was the kid who became my best friend.
As a Jew, he knew a little about being an outcast.
His family, mother, father, and sister became like a second family to me. I called his mom my
second Mom. The love and acceptance they showed me is something that helped make me the person I am today.
About age 13 or 14 I kept on having the crazy thought
that I was going to be Pope. It wasn't a job I wanted then, It isn't a job I want now.
Although I didn't know it at the time, the type of epilepsy I had, temporal lobe epilepsy, causes an abnormal interest
in religion.
My first hallucination, about
23 years ago, was inside a Catholic church. I stopped in during what I now consider my first manic attack.
I saw Christ move his arms, and perhaps his legs, on the cross. Down by his side, then up over his
head, over and over. I had a camera with me. I took pictures. They didn't
show any movement.
About seventeen or eighteen
years ago, I had a choice to make. Do I die in jail, or do I plead no contest to charges I don't
believe I was guilty of. I was being held in solitary confinement, denied pen, pencil, access to a telephone,
and prescription medication. My lawyer, which is typically in the plea bargain system, which has replaced
the justice system in this country, refused to speak to me, except to demand I plea no contest. This, by
the way, is not considered to be any violation of ethics by the California State Bar Association. I had
gone into status epilepticus, a life threatening condition, one seizure after another, on five separate occasions.
I felt the sixth would kill me. I chose life, but it wasn't an easy decision. It
meant I had to forgo my faith in other things I held dear, like the belief I had in the criminal justice system.
About a dozen years ago, I stopped in a church for
guidance. I was told by the minister he had nothing to offer. He also said that it was
about this time that people with a mental illness left the church.
The last time I stopped in a Christian church was about nine years ago. The minister was
whipping the congregation into a frenzy with how Jesus had kicked God out of heaven, and that Jesus was now God.
It was a little too much for me. Those folks were crazier than me.
The other week, I heard of someone who went to a church, I imagine
it was a lot like that one. He was told to stop taking his medication, that it was poison.
The congregation would pray for him. He would be cured. Well, it didn't
end as bad as it could have. He wound up back in the hospital. It's not the first
time I've heard of this.
People with mental illness, and their families, are looking for hope, love, guidance, community and purpose.
In my book, Mental Illness: A Guide To Recovery, I try to present much of the latest information about mental illness
in both holistic, and non-technical terms. The churches and temples are where people
confronted with mental illness often turn. All too often ignorance, stigma and arrogance are all they are
met with.
Please, help me change this.
Thank you.
[1]
The Journal Vol. 5 No. 3, 1994 RECOVERY, A FLIGHT FROM DISPAIR: AN EMERGENCE;
by Carmen Lee
[3]
The Journal Vol. 3 No. 4 , 1992 RELIGIOUS OUTREACH, Publishers Note; by Dan E.
Weisburd
[4]
The Journal Vol. 8 No. 4, 1997 SPIRITUALITY, Spirituality is not the same as
Religion; by Jerome Stack
[5]
The Journal Vol. 3 No. 4, 1992 RELIGIOUS OUTREACH, Something
Discarded; by Rev. Richard York
[6]
The Journal Vol. 3 No. 4, 1992 RELIGIOUS OUTREACH, Pathways
to Promise; by Jennifer Shifrin
[7]
The Journal Vol. 8 No. 4, 1997 SPIRITUALITY, Spirituality and Religious Outreach;
by Gunnar Christiansen, M.D.